We are NextGen ALS
NextGen ALS was started in 2021 by the Weber family who carries a genetic strain of ALS, which can be passed on to every “next generation”. Since then, the organization has grown to include other families who are equally invested in the cause. Genetic ALS has no known cure, and for each person with Genetic ALS there is a 50/50 chance that each of their children could be diagnosed with the same disease.
Below are individuals close to those in the NextGen ALS community who have been taken from us too soon by a genetic form of ALS.
Art Weber
In Loving Memory
1926 - 1999
Diagnosed in 1996
Click Art’s image to read his Story
Richard Brychell
In Loving Memory
1950 - 2020
Diagnosed in 2017
Peggy Driessen
In Loving Memory
1958 - 2018
Diagnosed in 2002
Click Peggy’s photo to read her Story
LuAnn Vandenberg
In Loving Memory
1954 - 2020
Diagnosed in 2014
Click LuAnn’s photo to read her Story
Cindy Esqueda
In Loving Memory
1954 - 2021
Diagnosed in 2012
Click Cindy’s photo to read her Story
Below are individuals close to those in the NextGen ALS community who are living with a genetic form of ALS.
Jim Weber
Diagnosed in 2012
Click Jim’s image to read his Story
Jean Micke
Diagnosed 2022
Click Jean’s image to read her Story
Cathy Kettner
Diagnosed in 2019
Click Cathy’s image to read her Story
Richard Weber
Diagnosed in 2019
Click Richard’s image to read his Story
“You either have ALS, or you help those who do.”
— NextGen ALS Motto